Contact Us

The Foundation can be contacted in the following ways:

Written correspondence, including donations, should be sent to:

Cystinosis Foundation UK
Unit 81304
PO Box 15113
Birmingham
B2 2NJ

Email Us

Please email advice@cystinosis.org.uk or use the contact form to contact us, stating the nature of your enquiry to help us pass it to the right person. We encourage you to comment on all aspects of the Foundation’s work, from fundraising ideas, requests for assistance/support, or simply telling us of an error on our site.

All material submitted via the contact form is subject to our privacy statement and terms and conditions.

Social Media

Connect with others in the cystinosis community through our social media platforms.