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Newsletter – Autumn 2025

Posted on October 11, 2025 by Alex Hutchison

Hello everyone and welcome to our autumn newsletter. We have some fantastic stories from fundra…

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Newsletter – Summer 2025

Posted on September 30, 2025 by Tom Kelly

Hello everyone and welcome to our Summer newsletter. Quite a bit of change with our trustees. We&#82…

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Newsletter – Spring 2025

Posted on March 24, 2025 by Tom Kelly

The Spring 2025 edition of our email newsletter is available to view at the link below. CFUK Newslet…

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Student Voice Prize 2024

Posted on March 23, 2025 by Tom Kelly

Our chair, Will Newman, once again had the opportunity to get involved with the annual Student Voice…

News

CNE International Conference 2024 – We did it!

Posted on November 17, 2024 by Tom Kelly

Cystinosis Network Europe and Cystinosis Foundation UK were delighted to host the 2024 International…

Events

Watch back elements of the CNE International Conference 2024 – Better Together

Posted on November 17, 2024 by Tom Kelly

Our joint International Conference with CNE, held in Manchester in July 2024, was packed full of bri…

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Latest News

Newsletter – Autumn 2025

Newsletter – Summer 2025

Newsletter – Spring 2025

Student Voice Prize 2024

CNE International Conference 2024 – We did it!

Watch back elements of the CNE International Conference 2024 – Better Together

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